psc trust logo
PSC
TRUST
PO Box 267 Southport PR8 1WD
tel: 01704 514377
     
Primary Sclerosing
Cholangitis Trust
Dedicated to finding a cure for PSC
In the Press

Members
join us ..... here

Volunteers
join us ... here

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

©psctrust
Have your say on future for liver services
Letter from the Chief Executive of the British Liver Trust 6th May 2008
I would like to ask your help at a really crucial time for everyone affected by liver disease. The Government has conducted a review of liver disease, who is affected and how they are treated. There is now an opportunity for the Government to take action to ensure that people across the country benefit from improved prevention, diagnosis and treatment.

However, liver disease has always been in the shadows, suffering stigma, and low levels of public awareness. There is a real risk that the Government will think that tackling liver problems is too hard and not a political priority.

We need your help in raising awareness amongst the political decision makers. We need you to tell them what it is like to live with liver disease and what currently happens to people when they are diagnosed, treated and cared for for their liver problems. Most importantly, we want them to hear from you what should happen in
the future.

We would like you to contact your Member of Parliament, by letter, email or in person at their regular surgery. You can find out who your MP is by entering your postcode on this website http://www.parliament.uklaboutlcontacting/mp.cfm or by calling Parliament on 020 7219 4272.

There is an example letter attached(click here to see). If you have access to email, you can also send a letter to your MP through this website www.writetothem.com. You can use some of the text we have drafted, but please make sure you include details about your own experience rather than just using the general text. As your constituency MP, it is your view of local services and what actually happened to you that they are interested in!

We would be very grateful if you could pass back to us any feedback that you have from your MP and we will of course, be very happy to support you in taking this forward. We really appreciate your help in contributing to this campaign to improve liver services and bringing the patient's voice to the heart of government.

Yours sincerely,
Chief Executive
BLT